Question 1: Donations were made in Hunter's name to Kennedy Krieger, do you have access to that money, if so, what would you do with it?

I have been asked this question a few times.  A donation made is not accessible to me or my family.  It is made into support of Kennedy and their efforts of research or charity.  If there would be an accessibility to the funds made then I would like to open an resource-type funding and research to aid other families in need with children of complex medical needs. While there are tons of resources out there to aid families, perhaps there are too many that we cannot find or have access to.  During Hunter's life things that were mentioned to help financially and support were all over and it is always a matter of getting paperwork, the right people, and the eligibility.  It's a long winding process that often times it becomes more of a hassle gaining the help than it is being in the program.  With all that was dealt with Hunter it has made me realize that I want to help others and help provide Doctors the research and funds needed to help future families out there, as well as support groups for families.  Maybe one day.